CVBF marked a significant milestone in its history with a special two-day team building event commemorating its 25th anniversary. The celebration, held on 28-29 January 2025, brought together team members from all three offices - Pavia, Tirana, and Bari - at the organization's headquarters in Bari, Italy. During this milestone gathering, colleagues participated in team [...]
A comprehensive analysis of paediatric Post-Authorization Studies (PAS) in the European Union has revealed significant insights into the landscape of drug research for children, highlighting both progress and areas needing improvement. The paper published on 11 December 2024 provides a detailed examination of paediatric studies registered between 2010 and 2023. Of the 2,574 Post-Authorization [...]
Donato Bonifazi, CEO of CVBF and Board Member of the Teddy European Network of Excellence for Paediatric Research, presented in the Global CardioVascular Clinical Trialists (CVCT) Forum in Washington DC on the 10th of December 2024. The event is a mission-driven brainstorming and think-tank forum aimed at "moving the needle" to advance various aspects of [...]
Newsletter, November 2024 Since its inception, CVBF has been more than just a research organization - it's a mission-driven community dedicated to transforming the landscape of paediatric and rare disease research. We dedicate a special focus on paediatric populations, where each breakthrough can mean a world of difference for children and families facing extraordinary challenges. [...]
The EU Health Coalition, with CVBF as a proud member, invites you to the EU Health Summit on 28 January 2025, in Brussels. This event will tackle pressing challenges in European healthcare and outline strategic solutions for a resilient, innovative, and patient-centered health ecosystem. European healthcare faces critical issues: unmet medical needs in rare [...]
The European Joint Programme on Rare Diseases (EJP RD) "Innovative Therapies and Personalized Medicine for Rare Disease" Massive Open Online Course (MOOC), led by CVBF, has received a valuable contribution from Dr. Annagrazia Altavilla, responsible of International Relations of Espace Éthique Méditerranéen/PACA Corse (AP-HM/AixMarseille University – France), and past Chair of the TEDDY Network of [...]
The European Joint Programme on Rare Diseases (EJP RD) "Innovative Therapies and Personalized Medicine for Rare Disease" Massive Open Online Course (MOOC), led by CVBF, has received an insightful contribution from Dr. Sara Casati, the ELSI Services & Research Unit Lead at BBMRI-ERIC. Dr. Casati shed light on the critical role of bs in advancing [...]
In a comprehensive contribution to the EJP RD's Massive Open Online Course (MOOC) on "Innovative Therapies and Personalized Medicine for Rare Diseases", led by CVBF, Dr. Bonka Georgieva provides crucial insights into data protection regulations that shape rare disease research. Dr. Georgieva explores how the General Data Protection Regulation (GDPR) grants individuals specific rights [...]
In a series of videos for the EJP RD's Massive Open Online Course (MOOC) on "Innovative Therapies and Personalized Medicine for Rare Diseases", led by CVBF, Dr. Stefano Benvenuti, Public Affairs Manager at Fondazione Telethon in Italy, stresses the importance of putting patients at the center of data collection and sharing efforts. Dr. Benvenuti [...]
In a compelling contribution to the European Joint Programme on Rare Diseases' MOOC "Innovative Therapies and Personalized Medicine for Rare Disease," led by CVBF, Prof. Annamaria De Luca from Università degli Studi di Bari ‘Aldo Moro’, shared crucial insights on why personalized approaches are essential for rare disease patients facing diagnostic and therapeutic challenges. [...]
