Role of CVBF
InNerMeD-I-Network (Inherited NeuroMetabolic Diseases Information Network) is a European project funded under the Second Heath Programme to be the first European Information Network on Inherited NeuroMetabolic Diseases (iNMDs). It started on the 1st of April 2013.
InNerMeD-I-Network wants to create a multimedial network of information targeted on the diagnosis and treatment of iNMDs and based on the collection and the exchange of validated information among scientific communities, health professionals, patients, patient associations and all interested stakeholders. iNMDs are a group of rare genetic metabolic diseases that impact on the brain causing mental retardation and progressive neurodegeneration which, if not promptly treated, could end in early death.
The project primarily aims to increase the current knowledge on iNMDs and speed up the timely and precise identification of patients who may benefit of the available treatments (experimental and marketed). The network will also promote biomedical research, straightening research capacities and fostering innovative therapeutic tools derived from the recent scientific advancements.
Second Heath Programme, European Commission
1.7 million euro
1 million euro
(1) Brains for Brain Foundation (B4B), Italy (Coordinator), Italy; (2) Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus (FGB), Italy; (3) Region Hovedstaden, Clinical Genetics Department, Rigshospitalet (RH), Denmark; (4) Sveučilište u Zagrebu, Medicinski fakultet (UZSM), Croatia; (5) Hospital Sant Joan de Déu (HSJD), Spain.