29th January 2020

 Newsletter January 2020


500 downloads for the article “Challenges in Paediatric Clinical Trials: How to Make It Feasible”

The chapter “Challenges in Paediatric Clinical Trials: How to Make It Feasible”, published IntechOpen Book and dedicated to the crucial and challenging aspects hampering the paediatric drug development has reached 500 downloads and had 1 dimensions’ citation and 1 cross-ref citation.

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Share4carers Kick off meeting, 17 January 2020, Athens

Kick-off meeting launching Share4carers project took place in Athens. CVBF is an associated partner in the project aimed to promote key solutions by uniting patients’ organization, academics, clinicians and carers from Belgium, Greece, Italy and Turkey at national level and providing them with the skills and knowledge necessary to promote psychoeducation and raise awareness about the societal impact of being children of parents with mental health problems in Europe.

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Amelie project: a new clinical study for CVBF

We are happy to announce that CVBF will be involved in the new project AMELIE – Anchored Muscle cELIs for IncontinencE aimed to test a new clinical approach for the treatment of faecal incontinence (FI) arising from childbirth injury in women. 

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DEEP-2 study: the final results are available on EudraCT 

We are glad to announce that the DEEP-2 study Phase III multicentre, randomised, open label, non-inferiority active-controlled trial aimed at comparing for the first time the efficacy of deferiprone (DFP) versus deferasirox (DFX) in paediatric patients aged from 1 month to less than 18 years, affected by hereditary haemoglobinopathies has terminated and the results are available on EudraCT Database and on the DEEP website.

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Call for abstract EPTRI Open Meeting

EPTRI (European Paediatric Translational Research Infrastructure) has announced a Call for Abstracts for the EPTRI Open Meeting that will be held in April 2020. EPTRI has launched this call inviting all the researchers that have expressed their interest to participate to EPTRI development by filling in the survey online. Deadline for Abstract Submission is 29 February.

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The new Erasmus+ Project Share4Brain will be kicked off very soon!

In December 2019 started Share4Brain (Sharing Good Practices for Brain Education in Europe), the project funded within the European Programme Erasmus Plus – Strategic partnership for adult education that will be kicked off officially on 15 and 16 March, 2020.

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January 2020, 28

“Inclusive education and Autism” meeting at Liceo “E. Fermi” of Bari
The event “Inclusive education and autism” was held at Liceo “E. Fermi” of Bari and CVBF participated to present SPASD project courses, the new strategies and e-learning tools improving inclusive education. The event provided the occasion to increase awareness on the theme of autism and the importance of inclusive education, and sensitize the young students about the significance of the integration in the classroom.

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January 2020, 29

Launch of the 25 Factories
The official presentation of the 25 Factories passed the selection within “Estrazione dei Talenti” (Talents mining) action will be held in Bari, Italy, at the pavilion of the Apulia Region, Fiera del Levante.

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March 2020, 11-14

EJP RD: join the RE(ACT) Congress and IRDiRC Conference
The BLACKSWAN Foundation and IRDiRC, the International Rare Diseases Research Consortium, will organise the RE(ACT) Congress and IRDiRC Conference 2020. This year the joint edition will be organized in collaboration with the European Joint Program Rare Diseases (EJP RD) and in partnership with Eurordis (European alliance of patient organizations) and RDI – Rare Diseases International (global alliance of people living with a rare disease).

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About the Author: Flogert Dollani


By Published On: January 29th, 2020Categories: Newsletter0 Comments