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What You Can Learn from 7 Theme Fusion Success Stories
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Understanding GDPR in Rare Disease Research: A Comprehensive Guide
In a comprehensive contribution to the EJP RD's Massive Open Online Course (MOOC) on "Innovative Therapies and Personalized Medicine for Rare [...]
Patient-Centricity and Robust Governance in Rare Disease Data Sharing
In a series of videos for the EJP RD's Massive Open Online Course (MOOC) on "Innovative Therapies and Personalized Medicine for [...]
Expert Highlights Critical Role of Personalized Medicine in Rare Disease Treatment for EJP RD MOOC
In a compelling contribution to the European Joint Programme on Rare Diseases' MOOC "Innovative Therapies and Personalized Medicine for Rare Disease," [...]
Paediatric Research: DEEP Project, Showcasing its Results at EFGCP Conference
Mariagrazia Felisi, Chair of the TEDDY Network and Clinical Projects Director at CVBF, delivered a presentation on the DEEP (DEferiprone [...]
Pharmacogenomics and Toxgnostics in Personalized Medicine on EJP RD’s MOOC
Dr. Marios Phylactides, a distinguished researcher from The Cyprus Institute of Neurology and Genetics, has made significant contributions to [...]
OMICS Technologies in Personalized Medicine on EJP RD’s MOOC
In a significant contribution to the European Joint Programme on Rare Diseases (EJP RD) “Innovative Therapies and Personalized Medicine for [...]
Big Data and Machine Learning in Personalized Medicine: Insights from the EJP RD’s MOOC
The landscape of healthcare is rapidly evolving, with big data and machine learning at the forefront of this transformation. [...]
Virtual Cohorts for Paediatric Rare Disease Research
CVBF embraces an innovative computational approach to advance research in paediatric rare diseases, involving the creation of virtual patient cohorts and the use of in [...]
OrphaDev4Kids Project Commences with Kick-Off in Bari
The OrphaDev4Kids project, focused on advancing medical devices development for rare diseases in children, will officially launch with a kick-off meeting on 19 July 2024 [...]
EPTRI’s 2024 Scientific Meeting
The European Paediatric Translational Research Infrastructure (EPTRI) has exciting news to share about its upcoming Scientific Meeting and legal incorporation as an international non-profit [...]
iCAN 2024 Advocacy and Research Summit
Mark your calendars! The 2024 iCAN Advocacy and Research Summit is scheduled to take place from 15-19 July in Bari, Italy. This event brings together [...]
CVBF’s Researchers Publications in Paediatric Data Standardization
Recent publications from researchers affiliated with the CVBF consortium underscore our commitment to advancing efforts in paediatric data standardization. The paper by Mariagrazia Felisi, Fedele [...]
DEEP-2 Lay Summaries for Children and Teens
Thanks to the collaboration with the TEDDY Network, CVBF has published two new lay summaries explaining the key findings of the DEEP-2 paediatric clinical [...]