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What You Can Learn from 7 Theme Fusion Success Stories
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Patient-Centricity and Robust Governance in Rare Disease Data Sharing
In a series of videos for the EJP RD's Massive Open Online Course (MOOC) on "Innovative Therapies and Personalized Medicine for [...]
Expert Highlights Critical Role of Personalized Medicine in Rare Disease Treatment for EJP RD MOOC
In a compelling contribution to the European Joint Programme on Rare Diseases' MOOC "Innovative Therapies and Personalized Medicine for Rare Disease," [...]
Critical Role of Stakeholder Collaboration in Personalized Medicine for Rare Diseases
A significant contribution to the European Joint Programme on Rare Diseases (EJP RD) “Innovative Therapies and Personalized Medicine for Rare Disease” Massive Open [...]
Pharmacogenomics and Toxgnostics in Personalized Medicine on EJP RD’s MOOC
Dr. Marios Phylactides, a distinguished researcher from The Cyprus Institute of Neurology and Genetics, has made significant contributions to [...]
OMICS Technologies in Personalized Medicine on EJP RD’s MOOC
In a significant contribution to the European Joint Programme on Rare Diseases (EJP RD) “Innovative Therapies and Personalized Medicine for [...]
Big Data and Machine Learning in Personalized Medicine: Insights from the EJP RD’s MOOC
The landscape of healthcare is rapidly evolving, with big data and machine learning at the forefront of this transformation. [...]
Donato Bonifazi, CVBF’s CEO to Represent TEDDY, the European Network of Excellence for Paediatric Research, in the ACT EU Multi-Stakeholder Platform Annual Meeting
We are pleased to announce that our CEO, Donato Bonifazi, a permanent member of the Advisory Group of the ACT [...]
OrphaDev4Kids Project Commences with Kick-Off in Bari
The OrphaDev4Kids project, focused on advancing medical devices development for rare diseases in children, will officially launch with a kick-off meeting on 19 July 2024 [...]
EPTRI’s 2024 Scientific Meeting
The European Paediatric Translational Research Infrastructure (EPTRI) has exciting news to share about its upcoming Scientific Meeting and legal incorporation as an international non-profit [...]
iCAN 2024 Advocacy and Research Summit
Mark your calendars! The 2024 iCAN Advocacy and Research Summit is scheduled to take place from 15-19 July in Bari, Italy. This event brings together [...]
CVBF’s Researchers Publications in Paediatric Data Standardization
Recent publications from researchers affiliated with the CVBF consortium underscore our commitment to advancing efforts in paediatric data standardization. The paper by Mariagrazia Felisi, Fedele [...]
DEEP-2 Lay Summaries for Children and Teens
Thanks to the collaboration with the TEDDY Network, CVBF has published two new lay summaries explaining the key findings of the DEEP-2 paediatric clinical [...]
CVBF’s New Video Offers Insights into Multinational Rare Disease Clinical Trials
We are proud to share with you the newly released informative video detailing the challenges and strategies involved in conducting the DEEP- 2 clinical trial [...]