The final event of the project “Consultation on civic participation in healthcare system”, promoted by Cittadinanzattiva with the non-conditioning contribution of Novartis, was held on 16th May, 2019 in Rome at “Sala Igea – Treccani”. The consultation process took place on 30th and 31th January ,2019 at the Luiss EnLabs, involved 100 health stakeholders and resulted in the release of a final Document and presented during the final event in May. The result of this work was the sharing of a “Matrix for the quality of participatory practices” which, starting from the identification of risks and appropriate actions to minimize them, aims to become a useful tool for public institutions to shape their participatory practices in public health policies and ensure an effective involvement of citizens.
Many experts worked on the drafting of the document, including representatives of institutions and health professionals, researchers, experts and citizens. Mariangela Lupo, Team Leader of KIDS Bari, the first Italian YPAG (Young Persons Advisory Group), and Antonio Di Pietro, one of the young members of KIDS Bari, were among the collaborators who reviewed and developed the document, providing useful insights for the analysis of participatory practices in healthcare system, such as the need to encourage and guarantee the continuous and adequate training of personnel. In this regard, the document highlighted and suggested the e-learning course “ICH-Good Clinical Practice (GCP)”, promoted by Consorzio per Valutazioni Biologiche e Farmacologiche and designed to provide a guide for all the professionals involved in clinical research and trials clinicians.
Likewise, patient’s involvement and in particular children engagement in the clinical process should be a fundamental practice, needed to maintain the trust of stakeholders and citizens. In this regard, the role of TEDDY European Network of Excellence for Paediatric Clinical Research in promoting adequate health policies and greater involvement of paediatric patients in the health system, was highlighted in the document (see “patient and family” web page).
More information on the event and the final document is available at this link.