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What You Can Learn from 7 Theme Fusion Success Stories
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The Sharing and Reuse of Personal Data for Research Purpose under the GDPR
The European Joint Programme on Rare Diseases (EJP RD) "Innovative Therapies and Personalized Medicine for Rare Disease" Massive Open Online Course (MOOC), [...]
Biomarkers and Biosamples: Powering Precision Medicine for Rare Diseases
The European Joint Programme on Rare Diseases (EJP RD) "Innovative Therapies and Personalized Medicine for Rare Disease" Massive Open Online Course (MOOC), [...]
Understanding GDPR in Rare Disease Research: A Comprehensive Guide
In a comprehensive contribution to the EJP RD's Massive Open Online Course (MOOC) on "Innovative Therapies and Personalized Medicine for Rare [...]
Legal Expert Sheds Light on European Framework for Rare Disease Treatments
Dr. Éloïse Gennet, junior professor in European health law at Aix Marseille University, CNRS, DICE, CERIC, Aix-en-Provence, France, has [...]
Biobanking Expert Highlights Critical Role of Quality Biosamples in EJP RD MOOC
Prof. Angelo Paradiso, a leading figure in biobanking and former Scientific Director of Istituto Tumori, National Cancer Research Center [...]
Gene Therapy treatment for Metachromatic Leukodystrophy (MLD), Insights on Rare Disease Treatment in EJP RD MOOC
Prof. Alessandro Aiuti, Deputy Director of Clinical Research at San Raffaele Telethon Institute for Gene Therapy (SR-TIGET), recently contributed [...]
Paediatric Research: DEEP Project, Showcasing its Results at EFGCP Conference
Mariagrazia Felisi, Chair of the TEDDY Network and Clinical Projects Director at CVBF, delivered a presentation on the DEEP (DEferiprone [...]
Innovative Therapies and Personalized Medicine for Rare Diseases: MOOC in Full Swing
As we are in full swing of the facilitation window in September, we're excited to share an update on the ongoing online course, "Innovative Therapies [...]
Newsletter, June 2024
Dear Reader, Imagine a world where every child, regardless of their condition, has access to safe, effective, and child-friendly therapies. This vision has been [...]
RACE Act accelerates Paediatric Oncology Drug Testing, FDA reports
The U.S. Food and Drug Administration (FDA) has reported a significant increase in the number of planned studies to test drugs for pediatric cancers, [...]
CVBF Attends EJP RD Final Conference in Bari
CVBF was among the participants at the European Joint Programme on Rare Diseases (EJP RD) Final Conference, held on 27-28 May 2024 in Bari, Italy. [...]
CVBF’s CEO represents TEDDY in EnprEMA as a member of the Coordinating Group
Donato Bonifazi, CEO of CVBF and a member of the Board of Directors of the Teddy European Network of Excellence for Paediatric Clinical Research, [...]
Virtual Cohorts for Paediatric Rare Disease Research
CVBF embraces an innovative computational approach to advance research in paediatric rare diseases, involving the creation of virtual patient cohorts and the use of in [...]