Italian Web Portal on Rare Diseases

Italian Web Portal on Rare Diseases

The Italian Ministry of Health presented the new website www.malattierare.gov.it dedicated to rare diseases to collect all the reference points on the Italian territory for rare patients.

It is estimated that over one million rare patients live in Italy, while around 325 thousand patients are registered in the National Register of Rare Diseases, which reports the pathologies registered by the LEA (Essential Levels of Assistance), coming from about 90% of the Regions. The new interinstitutional portal on rare diseases is dedicated to patients, their families and all operators of the national health system involved in the world of these pathologies. It is the result of a collaboration between the Ministry of Health and the National Center of Rare Diseases (CNMR) at the Istituto Superiore di Sanità (ISS).

2020-04-02T10:53:26+00:00 26/03/2020|Categories: News|