As part of the training activities proposed by EJP RD, the International Summer School on Rare Disease Registries and FAIRification of Data is organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP-RD task partners, aimed at the international research community, clinicians, medical specialists, registry curators, database managers, healthcare professionals and rare disease patients’ representatives. 

The in-person training will take place from September 26th – 30th at ISS in Rome, Italy; it may be adapted to an online format in case of uncertainty due to the evolution of the Covid-19 pandemic, or of other adverse conditions that might occur. 

The training course consists of two modules, and registration is possible for either module separately or for the course as a whole: 

  • “Rare Disease Registries”, September 26th – 28th 
  • “FAIRification of Data”, September 29th – 30th 

Registration is currently open and will close on April 13th. As each training module is limited to 30 attendees, those chosen applicants will be informed by May 3rd, with a reserve list open until May 20th (if the training is delivered face-to-face) or September 9th (in case of online delivery). 

More information and registration here: https://www.ejprarediseases.org/event/international-summer-school-on-rare-disease-registries-and-fairification-of-data/ 

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By Published On: March 15th, 2022Categories: News0 Comments