On September 17-18, 2019, the first General Assembly of EJP RD will take place in Gdansk, Poland. The General Assembly will be twinned to the workshop “Rare disease perspectives in Central – Eastern Europe”.
The European Joint Programme on Rare Diseases (EJPRD) is a Co-fund action aimed to create a comprehensive, sustainable system allowing virtuous circle between research, care and medical innovation.
The Assembly will represent an occasion to share the concrete strategies and the future activities to be carried out to strengthen and join the efforts in the field of Rare Diseases research.
The project sees the participation of CVBF in particular in the work package 19 that supports the Rare Diseases (RD) community to more effectively translate high quality research into high impact interventions for the RD patient community, by creating a bridge between basic research and medical innovation, known as the “bench to bed-side” approach.
Moreover, CVBF is involved in the evaluation of the quality of the EJP RD activities and the achievement of the expected project goals within the Coordination and Management Work Package.
Further details are available on the official EJP RD official web page.