This new Special Issue is dedicated to the active involvement of CVBF in the European Joint Programme for Rare Diseases (EJP RD), a consortium that aims to create an effective rare diseases (RD) research ecosystem for progress, innovation, and benefit of people living with RD. In this contest, CVBF has been actively involved, since the beginning, in several EJP RD work packages (WPs), bringing its paediatric competences and expertise to develop workshops, such as the Modelling & Simulation (M&S): Research Methodologies for Small Populations in Rare Diseases” held in Bari in July, as well as tools to bring basic research and medical innovation closer, such as the Innovation Management Toolbox, a virtual library that provides self-help resources in RD translational medicine openly accessible to the whole RD research community. 

All the detailed information on the CVBF role in the EJP RD ecosystem is available here 

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By Published On: September 19th, 2022Categories: News0 Comments