Patient’s involvement in paediatric clinical trials is recognized as an important component at European and International level and an essential contribution to paediatric clinical research. In order to guarantee that paediatric patients and their carers are effectively involved on the basis of their health conditions and personal experiences, it is necessary that they are well informed and trained on clinical research themes and activities they can perform in the scientific projects. For this reason, Consorzio per Valutazioni Biologiche e Farmacologiche within the conect4children project (c4c) collaborated and coordinated the development and launch of the new video “c4c – We want to hear from young people!”. This video is addressed to members of Young People Advisory Groups (YPAGs), paediatric patients and their families and explains the activities they can be involved in within the c4c project.
c4c wants to provide every paediatric patient with a voice, placing them at the centre, and assigning them an active role in the development of the different clinical trials carried out by c4c.
The video is available at this link.