EPTRI toolkit for patients and families

EPTRI toolkit for patients and families

In the framework of EPTRI (European Paediatric Translational Research Infrastructure) a toolkit for patients has been developed to explain what the translational research is as well as to provide information about basic research and its models and resources. Providing informative material about the objectives, the goals and the resources used in the paediatric translational research is an important strategy to train empowered young patients and boost their engagement in the research and development process.

The script of the video was revised by English-speaking children as well as by the youths of the Italian, Albanian and Spanish Young Persons Advisory Groups (YPAGs), respectively KIDS Bari, KIDS Albania and KIDS Barcelona to have a final children-friendly version using a comprehensible language for paediatric patients. The video will be translated in different European languages among which Italian, Albanian and Spanish and will be available soon on the official EPTRI website.

2020-06-17T15:16:06+00:00 17/06/2020|Categories: News & Events|