THE DUCHENNE DATA FOUNDATION HAS SUCCESSFULLY CONCLUDED THE THIRD DUCHENNE PATIENT ACADEMY

THE DUCHENNE DATA FOUNDATION HAS SUCCESSFULLY CONCLUDED THE THIRD DUCHENNE PATIENT ACADEMY

On December 6, the Duchenne Patient Academy training, opened to DMD/BMD reality, has concluded its third edition.

As it has been already underlined before the start of the training on our webiste, this event had the aim to to create a wider understanding of Duchenne Muscular Dystrophy (DMD) and coordinate the global advocacy of the community.

Together with this aim, a new way of approaching and a different connectivity, due to pandemic were the key topics of this edition. What really mattered was how to create a stronger and united community remotely.

The main highlights of the event were:

  • Duchenne Patient Academy is a training platform for Duchenne and Becker MD patient advocates
  • In total, 120 participants from 52 countries joined the week-long training with 33 speakers
  • The broader rare neuromuscular community was invited to join the first three days
  • The online format enabled participation of young adults with Duchenne
  • Topics discussed included research, capacity building, policy & regulations, data, fundraising and clinical trials
  • DPA facilitated discussion among all stakeholders to explore new approaches and propose new frameworks for collaboration

We are also glad to share a quote from Javier Torras, a DPA participant “It have been 7 days of very interesting presentations with more than 100 participants in every session. I am surprised to see so many Duchenne organizations all over the world involved and the big quantity of high talented people working hard and fighting against this disease. This gives me confidence that the battle to Duchenne will be won sooner or later.”

The official press release is available on Duchenne Data Foundation website.

2020-12-16T08:47:12+00:00 16/12/2020|Categories: News|